Showing posts with label public health. Show all posts
Showing posts with label public health. Show all posts

Wednesday, January 27, 2010

It's Election Time - Learn Where Illinois Candidates Stand on HIV and Public Health


The Illinois primary elections are coming up on February 2 - less than a week away.  While the airwaves are flooded with campaign ads, the candidates have said little until now about their views on critical public health issues, including HIV/AIDS.


Today, the AIDS Foundation of Chicago (AFC), the Illinois Association of Public Health Administrators and Illinois Public Health Association released a compilation of the views of 77 candidates on HIV and public health issues. All three groups are non-partisan organizations and do not endorse candidates for public office.

Surveys were sent to over 400 candidates running for federal senate and house seats, as well as state-level offices. Five statewide candidates—including two running for governor—submitted written statements on public health and HIV. Their statements are included in the full report.

Check out the questionnaire to see where candidates stand on HIV/AIDS programs and public health. Most importantly, get out and vote on Tuesday, February 2.


Monday, November 30, 2009

China to Open a Gay Bar for World AIDS Day

Via Towleroad -




The bar for gays will open tomorrow, World AIDS Day, financed by public funds to the tune of 120,000 yuan ($17, 576), the Beijing News said, offered by Dali Prefecture government, and is to be run by The Good Friend Center, a non-governmental organization for gay men. Yunnan has the highest number of HIV/AIDS cases in the country, official data indicates.

Zhang Jianbo, the bar's manager, told the Global Times that the bar will not be operated for merely commercial purposes but rather serve as a platform to raise awareness of its gay clients about safe sex practice among them. "We might not even sell beverages in the bar. We will turn the bar into a tribune to offer lectures and training to gay people in order to reduce AIDS infections among them," he said.

Read the rest....

Tuesday, November 17, 2009

This Thursday - A Crappy Day for a Good Cause




November 19th is World Toilet Day - a day to celebrate the importance of sanitation and raise awareness for the 2.5 billion people (nearly half of the world's population) who don't have access to toilets and proper sanitation.

2.5 billion people worldwide don't have access to proper sanitation, risking their health, stripping their dignity, and killing 1.8 children a year.

Learn more from the World Toilet Organization.



Monday, August 24, 2009

Sadness When I Expected Anger: On Public Health and Gay Men


via Trevor's blog, by Trevor Hoppe

I was shocked last weekend in Chicago at the LGBTI Health Summit when I began to cry in the middle of a workshop. It was my fourth session of the summit, and I was feeling a bit worn thin from the weekend's intensity. Nevertheless, I did not anticipate the power of the emotions I felt as I described my anger and intensity over Public Health's treatment of gay men's sexualities.

The workshop was titled, "Destroying Public Health: for the Good of LGBT Health: Critique. Alternatives. Discussion," and was a collaboration between myself and Bill Jesdale. He was going to do a piece on risk, and I was going to do an analytic-polemic piece on the need to destroy Public Health. I had given a similar presentation before at an academic conference (audio; slides), then-titled "Resisting Public Health." But I felt the need to rev things up a bit, so I opted for a more loaded verb.

Read the rest.

Monday, June 8, 2009

Are 119 million American wrong about health care?

via Consortiumnews.com, by Robert Parry

As the health insurance industry and its defenders in Congress lay out their case against permitting a public option in a reform bill, perhaps their most curious argument is that some 119 million Americans are ready to dump their private plans and jump to something more like Medicare – and that’s why the choice can’t be permitted.

In other words, the industry and its backers are acknowledging that more than one-third of the American people are so dissatisfied with their private health insurance that they trust the U.S. government to give them a fairer shake on health care. The industry says its allies in Congress must prevent that.

The peculiar argument that 119 million Americans must be denied the public option that they prefer has been made most notably by Sen. Chuck Grassley of Iowa, ranking Republican on the Senate Finance Committee, which is one of two panels that has jurisdiction over the health insurance bill.

“As many as 119 million Americans would shift from private coverage to the government plan,” Grassley wrote in a column for Politico.com. That migration, Grassley said, would “put America on the path toward a completely government-run health care system. … Eventually, the government plan would overtake the entire market.”

Grassley’s logic is that so many Americans would prefer a government-run plan that the private health insurance industry would collapse or become a shadow of its current self. That, in turn, would lead even more Americans entering the government plan, making private insurance even less viable.

Rarely has an argument more dramatically highlighted the philosophical question of whether in a democracy, the government should represent the people’s interests or an industry’s.

But Grassley said he is simply upholding “the promise that if you like the coverage you have, you can keep it. … That’s why I’m concerned about a government-run plan that forces people out of private insurance.”

The counter-argument, of course, might be that if the health insurance industry hadn’t dissatisfied so many customers – indeed forcing many sick people into bankruptcy because of excessive fees, denial of coverage and gaps in permitted medical treatments – there wouldn’t be so many Americans eager for a public option.

So, now to protect the health insurance industry, Congress must stop 119 million Americans from leaping into the arms of a government plan.

Read the rest.

Thursday, April 16, 2009

He loves us, he really loves us



Gay men's health activist Bill Jesdale gives some love to LifeLube's "How are you healthy?" campaign on his blog.
"Unlike most public health campaigns, it's not about fear. It's not about guilt. It's not about putting some unattainable goal in front of you. It's not about telling you what to do, or more accurately, telling you what not to do.vI like to think of it as the perfect antidote to the usual "To Don't" list that we get from public health all the time. The question - how are you healthy? - invites you to reflect, to celebrate what's going well, to personalize your own answer," he says.
Read all the other nice things he has to say.

THANK YOU BILL! Big MWAH to you.

Monday, March 30, 2009

Please Consider Justice and Inclusivity for ALL Populations As You Reform Health Care


Dear President Obama,


Please Consider Justice and Inclusivity for ALL Populations As You Reform Health Care

As LGBT Illinoisans, we know your commitment to this cause. Your record in support of civil rights for all and health care reform speaks for itself. You want a more inclusive, healthier world with less health disparities and stronger community health. A world where lesbian and bisexual women do not suffer from disproportionately high rates of smoking, alcohol use, obesity, and lack of insurance that place them at higher risk for breast cancer, heart disease, diabetes, depression, addiction, and other chronic, life-threatening illnesses. A world where gay and bisexual men do not suffer from disproportionately high rates of psycho-emotional disorders, addictions, and (most notably) HIV/AIDS. A world where transgender folks are able to be healthy and live free from violence.

With National LGBT Health Awareness Week just past, March 9-14, 2009, and health care reform gaining momentum, we must remember some basic priorities.

The LGBT population must be included in health care reform. When considering the topic of health care reform, you must not ignore the great social injustice being suffered by the groups of greatest health disparity. Therefore, I call on you to ensure that any healthcare reform be inclusive of LGBT folks. For the past eight years, we have had to be present, but invisible in the national health conversation.

By making health care reform inclusive of the LGBT community, healthcare settings could become safe, helpful places rather than venues of shame, stigma, and prejudice. Preventative practices and messages would be appropriate and inclusive, reducing the cost of reactionary treatment to preventable disease. We will not have to use the emergency room as our primary health care provider as so many of us without insurance are forced to do. Instead, we will know that providers have knowledge about our true risks, best practices for how to care for us, and how to be respectful of our families and identities.

The LGBT population must be included in data collection – so that we can understand the truths of our bodies and lives. The need for accurate, inclusive data is two-fold: 1) if we don’t know what is wrong in our community, we can’t fix it and 2) data is the basis for all federal support and funding for health initiatives. Our national surveys don’t include sexual orientation and gender identity questions. We need these tools to accurately understand what problems all of us face so we can solve them. Furthermore, without data about health issues in our population, the LGBT population is consistently overlooked by federal programs.

By making health care reform and research LGBT-inclusive, we will be able to better care for the entire community. These reforms will affect the most vulnerable members of our community – those who can’t choose a health care provider based on what their website profile says, but who delay care until crisis strikes. If health care reform is LGBT-inclusive, our doctors, nurses and staffs will be better able to care for all of their patients and our nation’s health will improve.

Michael C. Cook
President and CEO
Howard Brown Health Center
Chicago

Wednesday, March 18, 2009

Resisting Public Health: Working Within the Gay Men's Health Movement to Produce Change


via Trevor Hoppe

1) Why resist public health?
2) How have others resisted pathologizing / marginalizing scientific discourses?
3) What do I believe as an activist-researcher?
4) How have I put those beliefs into practice as a researcher?
5) What are the big questions to consider as we move forward?

Check the slides out.

Tuesday, March 17, 2009

HIV & Health Care: What's the Cure?


Health care: there are many problems, and for far too long there have been no solutions.
Some lawmakers want a sweeping change to our health care system.
If you want to know how this will effect your life, check out the forum on Illinois Health Care Reform and HIV/AIDS going on next Monday, March 23rd. The AIDS Foundation of Chicago and Mike McRaith, Acting Secretary of the Illinois Department of Financial and Professional Regulation, will hold an illuminating discussion of state and federal health care reform initiatives and what they could mean for HIV/AIDS services in Illinois. In addition, presenters will highlight advocacy strategies that HIV/AIDS community members need to take in order to pass these critical health care measures. RSVP today and find out how you can create a better tomorrow!

Health Care Reform and HIV/AIDS
Monday, March 23, 2009, 4:30-6:00 PM
The Adler School of Professional Psychology,
65 E Wacker Place, Room 1705, Chicago, IL


To RSVP, email Kassie Beyer at kbeyer@aidschicago.org

The Shovel Ready to Bury Me: Economic Thinning of the AIDS Herd

Anyone who says chasing benefits is a full time job is not exaggerating.

It’s a way to generate profit by thinning the herd, and only a minority representing the most able, determined and industrious of the herd will make the cut.


by Michael Scarce
San Francisco

I continue to read news stories about national economic woes, which typically include vague but consistent mentioning of the disparate toll taken on “those most vulnerable,” such as the disabled, elderly, and veterans.

I am one of those most vulnerable. I am unemployed, have AIDS, reside in a city with one of the nation’s highest cost of living, and in a state suffering some of the most severe budget cuts.

Statistics aside, I’m not hearing or reading much about others like me, despite our numbers. I am certain part of the silence is due to shame: in being jobless, not making ends meet, or a reliance on government assistance. Another reason includes the reality that a life of unpredictable crisis means one rarely has the luxury of opportunity to sit down and write about it.

What follows is my account of living under conditions of precarity, with awareness that I am a target sited firmly in the cross hairs of a system designed to eliminate me. I do not claim to be representative in any way, in large part because I keep finding ways to survive. I have been able to adapt, navigate, and challenge a system that has transformed from evasive neglect to direct hostility against those most vulnerable. When times get tough, Darwin prevails, and survival of the fittest is now in full swing. All of this unfolds when “people like me” are most in need of the very safety nets being slashed away as a solution to problems that are not alleviated, but merely shifted to those least likely to resist bearing the burden.
If they sound overly laden with dates, details, and technicalities, it’s because they are. These are the day-to-day stories I know are commonly experienced by others but rarely shared.
A few weeks ago I received a letter from the company providing my COBRA coverage, notifying me that all of my health insurance had been canceled, including dental and vision plans. The reason cited for cancellation of my coverage was failure to make monthly premium payments by the deadline. Because I had made timely payments, this seemed like an error, so I called the company for an explanation. It turns out that my previous employer had made a change in their health plan on December 30th, retroactive to take effect December 1st, without bothering to tell me. The change included a monthly cost increase of $175. Premium payments are due the last day of the month for coverage provided. On December 31st, the day after my employer made changes to the plan, my payment had fallen short because I had no knowledge or opportunity to pay the difference. As the result, my health plan was terminated, also retroactively, effective as of November 30th. Between that date and receipt of the termination letter in February, I received thousands of dollars of medical services for which I am now responsible to pay, in addition to the loss of health insurance. Ironically, my former employer provides support and services to promote the health of HIV positive gay men. The COBRA representative tells me the cancellation is final and there is no way to reverse what has happened.

In addition to eligibility for social security benefits due to my disability, I previously had access to a health coverage program named MediCal, which is California's version of Medicaid for people who are both disabled and the poorest of the poor. A few months ago, I visited the pharmacy where I pick up my monthly supply of HIV medications and other prescriptions. Some of the medications previously covered by MediCal had been rejected for payment. Upon asking the pharmacist for a reason, he explained my MediCal coverage had been terminated, even though I had never received any notice to that effect. Several weeks later I received an unexpected letter notifying me that my MediCal coverage had been instantly reinstated as the result of a class action lawsuit I knew nothing about.

Shortly after the reinstatement, I began to endure a series of statewide government audits conducted of MediCal recipients. The audits are explicitly intended to make cuts in California's budget in the midst of economic crisis. The first audit demanded a litany of documents, including those I had already provided to begin receiving MediCal, such as a copy of my original birth certificate. In addition to bank statements, a copy of my driver's license, and a personal written statement from anyone generous enough to provide me with any form of non-financial support such as free food or housing, they also wanted a photocopy of my Social Security card. This seemed especially petty and bureaucratic given the only information on the card is my name and Social Security number, and my MediCal hinges upon being a recipient of Social Security benefits.

The most recent demand for documentation was postmarked February 25th, which I received late in the afternoon on Friday, February 27th. The letter threatened termination of my MediCal if the enclosed 18 pages of forms were not completed and received by Saturday, March 7th meaning the latest day I could safely mail them was the following Wednesday, March 5th. I had less than one week, and only three business days, to provide detailed medical records and respond to questions about everything from a description of my daily activities to the last fifteen years of my employment history. At the time I received the letter, most of the information I needed was packed away in boxes while in the process of moving to a new apartment that is more affordable. Although I began postal forwarding before the move, I continued to sporadically receive important mail at my old address. I now live in fear of missing even a single letter that could spell disaster for my health or income.

Last week I returned to the pharmacy again for my monthly supply of HIV medications and was told I could not receive them because my MediCal had been "frozen." After a few phone calls, I discovered MediCal had stopped coverage because they believed I was still receiving COBRA, which should be providing payment for my medications.

Luckily, I was able to meet with a benefits counselor at a local nonprofit AIDS service organization within 24 hours, despite their own budget cuts and the flood of others like me seeking similar assistance. The counselor faxed my COBRA cancellation letter to a contact they had at MediCal, who estimated the computer system would reflect the correction four days after my HIV medications should have been refilled. If you know anything about the need for antiviral treatment adherence to prevent a drug resistance that eliminates future treatment options, you can understand my anxieties around having surprise prescription delays month after month.

The above examples are only a few of many. If they sound overly laden with dates, details, and technicalities, it’s because they are. These are the day-to-day stories I know are commonly experienced by others but rarely shared. I liken the whole process to retail store rebates.

Stores love rebates in large part because they bank on the fact that a percentage of people will fail to follow their exact instructions by throwing away the box with something one needs to include with their claim, losing proof of purchase, not circling and initialing the rebate item on a receipt, missing the firm deadline, and so on. They count on an additional percentage who simply forget or don’t bother because it’s too complicated or bothersome. It’s a way to generate profit by thinning the herd, and only a minority representing the most able, determined and industrious of the herd will make the cut. As my herd begins to dwindle and some of us disappear, we are chalked up to cracks in the system or the victims of unfortunate circumstance, marked only by the consequence of emergency room visits, homelessness, or mental illness.

Let me be clear in saying this is not a complaint. Quite to the contrary, I am incredibly grateful for all that I have, including every benefit and service I receive. I am thankful that I was not experiencing a bout of depression or recovering from outpatient surgery as I scrambled to submit complicated paperwork in less than a week’s time. I take comfort in the complex filing and record keeping system I have developed that includes every postmarked envelope and diary logs of each phone call. I am fortunate to have an Internet connection, a knack for researching detailed policies and regulations, and live in a community with HIV-related services that have not been decimated beyond helping me.

Anyone who says chasing benefits is a full time job is not exaggerating.

In addition to my day job in personal benefits management, I work overtime conducting a search for paid employment. I am optimistic about my ability to eventually recover from financial destitution and regain secure health coverage.

But even though I remain hopeful for the coming attempts at economic stimulus, it’s difficult to see beyond the near future, in which it seems the only shovel I am likely to encounter is the one ready to bury me.

Monday, February 2, 2009

Let's Talk About Jobs


The truth is that the majority of stimulus funding would be used to support state and local health departments and communities. Health departments across the nation are experiencing budget shortfalls and are being forced to reduce staff and provide fewer public health services.

via the Huffington Post

Not even the hip-hop trio Salt-N-Pepa could have predicted that their most ubiquitous nugget of pop culture advice ("Let's talk about sex") would be used as a conservative strategy to derail President Barack Obama's $800 billion economic aid plan.

But as the Senate begins debate this week on the plan, one apparently titillating item in the package -- $400 million in funding for STD screening and prevention -- has had conservatives talking about sex with Dr. Ruth frequency in an attempt to frame the funding as "wasteful" and morally objectionable.

Read the rest of this post, by Johnathon Briggs.


Saturday, July 19, 2008

The Worst Kept Non-Secret in Public Health


by David Ernesto Munar

We may never know whether this delay is due to legitimate scientific concerns, deliberate suppression or both. But with every month of delay, the CDC is missing opportunities to sound a much-needed alarm to those who have allowed inadequate funding and ill-advised policy to perpetuate high rates of HIV transmission.

Since the fall of last year, rumors have been circulating that the Centers for Disease Control and Prevention (CDC) will release revised statistics indicating that the number of people living with HIV in the United States is actually higher than previously reported. Some say the number could be as much as 50 percent higher. But, nearly three-quarters of a year later, there is still no indication of when we might see a new report documenting the likely number of HIV infections occurring each year in America. David Ernesto Munar, a vice president at the AIDS Foundation of Chicago and chairman of the board of the National Association of People with AIDS, writes the following piece in response to the CDC’s continued silence on the matter.

For more than a year, U.S. federal officials have attempted—sometimes in vain—to quell rumors that the number of new HIV infections in the United States is on the rise. The Washington Blade first broke the story in November 2007, reporting that the CDC was poised to raise the official estimate for the number of HIV infections believed to occur in the United States to a range as high as 58,000 to 63,000 per year—a greater than 50 percent increase over the current estimate of 40,000 annual HIV infections.

By December 2007, World AIDS Day media coverage in The New York Times, The Washington Post, Bloomberg News, The Associated Press and other outlets amplified the leaks. They also described growing frustration among AIDS community advocates with delays in making the important research findings public.

Read the rest on POZ here.



Thursday, July 17, 2008

Viral Art



Before the gays were routinely portrayed as vectors of disease and purveyors of pathogens, it was the ladies who were the naughty naughty ones... A new exhibit at the National Academy of Sciences in D.C. called "An Iconography of Contagion" highlights some of the posters that were used to scare the crap out of innocent, unsuspecting hetero males.

Read more on the Accidental Blogger - including a gallery link of some of the images on display.

[Thanks to G. Simone for spreading the contagion to LifeLube]


Thursday, May 22, 2008

Public health turns to virtual worlds to get out reality-based health messages


[snip] In a growing number of North American cities, people who learn they have a sexually transmitted disease can use a web tool known as inSPOT to inform their sexual contacts and urge them to be tested. It's like an e-vite to seek treatment. Notifications can be sent anonymously.

Toronto and Ottawa are the two Canadian cities registered with inSPOT. Last Christmas, Toronto Public Health used a new technology - proximity marketing - to advertise the service to the gay community.

Using a device called a hypertag in the city's Gay Village, a message was beamed out to all Bluetooth-enabled cellphones within range. Recipients were asked if they would agree to view a message from Toronto Public Health.

Of 1,463 phones that received the message, 317 or 21.7 per cent downloaded the information about inSPOT, says Allie Lehmann, sexual health promotion manager in the directorate of healthy living. The department recently used the technique in six city high schools to raise awareness of chlamydia prevention and testing. [snip]


Read the whole article.

Wednesday, May 7, 2008

On LifeLube's nightstand...


Most public health students, academicians, and practitioners recognize the association between racial/ethnic minority status and the disproportionate burden of preventable disease in the United States.

Much less attention has been directed, however, toward health disparities that affect gay and bisexual men. These disparities affect the lives of an estimated 5.3-7.4 million American men, and are an important concern for public health.

Until very recently, the relative invisibility of this group and a paucity of empirical data have hampered attempts to identify health disparities experienced by gay and bisexual men. This book reviews and synthesize evidence of health disparities among gay and bisexual men, identifies individual and community factors that contribute to these disparities, and articulates strategies for public health efforts to eliminate disparities.

To date, these disparities have been largely discussed in isolation in the research literature in a manner that does not permit a comprehensive examination of these problems, their underlying causes, and potential solutions. A primary emphasis of the book documents health disparities among gay and bisexual men while also describing public health solutions to these challenges.

Oxford University Press.

[we'll let you know how we like it...]

Monday, November 26, 2007

What Ails Public Health?


[This is a fascinating and provocative piece
forwarded to us by a faithful reader named Chris - thanks!
LifeLube would love to know what YOU think...
So tell us - leave a comment...]


from The Chronicle of Higher Education The Chronicle Review
[images a la Google]

From the issue dated November 9, 2007
What Ails Public Health?

By PHILIP ALCABES

Public health, once the gem of American social programs, has turned to
dross. During the 20th century, the public-health sector wiped smallpox
and polio off the U.S. map; virtually eliminated rickets, rubella, and goiter; stopped epidemic typhoid and yellow fever; and brought tuberculosis — once the leading cause of death in U.S. cities — under control. It sought, with considerable success, to reform social and economic structures so the poor would have the same chance at decent health as the wealthy.

But public health seems to be a phenomenon of the past, like the Great Society or the New Deal. Not that we don't talk about it, or teach it: There are 38 accredited public-health schools and 67 other institutions offering accredited master's programs in public health in the United States, and more are being developed. If we in the academy are as serious about public health as the profusion of professional training programs signals, then we can begin restoring the field by changing how we teach it.

We have to revise our teaching radically because evidently we are failing. One testament to our failure is the activity of American health officials, the products of public-health training programs. In the past six years, Americans have seen officials redirect tax-levy funds to pay for ludicrous "biopreparedness" exercises in anticipation of wholly fabricated epidemic dangers, concocted by an administration unable to admit its mistakes after September 11. We have heard officials endorse useless "virginity pledges" for teenagers. We have seen them invoke federal quarantine law — claiming there was a hazard to the public — to arrest one man who had flown on an airplane while carrying noninfectious tuberculosis. We have listened to them tell us that our improper diet is the second leading cause of death in America. A couple of years ago, the health commissioner of New York City ignited a moral panic by issuing an official health alert over a single case of AIDS, pontificating about condom "complacency." Most recently, health officials have swept transfats out of restaurants. (If this has not happened in your town yet, it will — because no health official can afford to miss the bandwagon of banning demon foods, even, or especially, ones for which there is little sound evidence of serious harm.)

But in the past six years, no health official has argued forcefully for social changes that would genuinely improve the public's health on a significant scale. While we hear plenty about how personal "lifestyle" changes can make us healthier, health officials are not pushing for social fixes that would have even more powerful effects by limiting inequalities in wealth or their health-impairing correlates. They don't demand reforms of the sort that would make us more like those developed countries (Denmark, France, etc.) where infant-mortality rates are more than 20 percent lower than ours and where life expectancy is longer — changes like more affordable housing, a guaranteed minimum income, a higher minimum wage, restoration of workplace-safety oversights emasculated by big-business-friendly government, or better and cheaper public transportation systems.

Broad reforms in the public sphere still happen, and sometimes to the benefit of Americans' health, but health officials have not created them. Housing-policy experts link the supply of affordable housing to healthiness of neighborhoods; health officials, with a few vocal exceptions, are largely silent on the matter. Workplace safety is left to the Occupational Safety and Health Administration and the National Institute for Occupational Safety and Health, the federal agencies explicitly dealing with occupational health; health commissioners have merely moved to ban smoking in bars. The corporate world, no longer able to afford the cost of employee health insurance, will probably push through universal health insurance in some form soon; but too many public-health officials have lost interest in reforming health-care finance.

The decrepitude of contemporary health policy is especially lamentable because the old model of public health worked so well. Traditional public health — health improvement through social reform — dramatically altered the way Americans live and die. In the course of the 20th century, educating women and opening jobs to female workers were central, and so was offering information on family planning: Together, those factors reduced family size, which contributed more strongly to longer American life spans than any other factor. Enhancing nutrition through food inspection and by fortifying or supplementing common foodstuffs undercut the nutritional consequences of poverty. Creating public pure-water and sewage systems made cholera, the scourge of the 19th-century poor, an anachronism. Providing adequate housing, social-welfare benefits, and public baths and sanitary facilities relieved the squalor of the working class's living conditions, limiting the circulation of typhoid and other contagious diseases. And broad-based immunization programs all but eliminated the great threats to children's health, like polio, diphtheria, and measles. Public health might not have put money in the pockets of the indigent, but it restructured American society in order to ease bodily suffering.

That model has gone belly up. Public-health officials forsake the restructuring of society, and public-health professionals outside of government, including academics, often back those officials in their grandstanding and empty gestures.

When officials publicize one or another case of HIV transmitted by someone who should have known better — the New York City case in 2005, an upstate New York case in 1997 that became a media carnival, another in South Dakota in 2002 — some of my colleagues have contributed to the ensuing moral panic. "Sometimes you have to scare people to get them to do the right thing," they tell me. Many did the same last May when federal agents manufactured a health crisis where none existed by calling a news conference to alert the public about the man with tuberculosis who had flown on a commercial airliner. Even though airplane-cabin air is not conducive to the spread of TB bacteria, the man was not infectious, and officials knew that tests of the TB strain in question were incomplete, still some academics in the field ratified the official manipulation by calling the hapless man "grossly irresponsible" and turning a public-health nonevent into a security breach.

Public-health professionals also enabled the panic over West Nile virus, backing the spraying of insecticides onto parks, streets, waterways, and sometimes passers-by, when there was no cause for alarm. (West Nile does cause serious illness and death — but control of mosquito larvae in standing water is more important than killing the ones that are flying; window screens and long sleeves are effective mosquito deterrents; and the low rate of West Nile illness even in an outbreak doesn't justify the risk of putting toxic pesticides in the water supply and onto people.) And many of my colleagues support the bans on transfats, so friendly to corporate food producers like Frito-Lay and McDonald's — who can now entice people to eat their products with claims that they are "transfat free" — but of no use to the public. Others subscribe to the moral panic over crystal meth, hysterically associating it with the spread of HIV, despite the lack of evidence.



In place of the old model of social reform, today's health policy revolves around magical thinking. One part of that is a fantasy that Americans are susceptible to unprecedented disasters because of global travel and trade. There are epidemics, sure. But the U.S. Centers for Disease Control and Prevention remains very good at detecting and directing the control of outbreaks when they do occur — the severe acute respiratory syndrome (SARS) episode of 2003 offered abundant evidence of that capacity — and the structure of 21st-century American society does not enable contagion of the sort that caused catastrophic mortality in 1918 from influenza and in 1849 from cholera. (We have smaller families, are less often clustered in unavoidable close contact, and have municipal water and sewage systems.) Even HIV, the main pandemic virus of our era, spread relatively slowly in the United States, after its initial inflammations of the late 1970s and early 80s.

But facts are only scenery when the main plot is driven by an idée fixe about global threat. The international spread of SARS in 2003 was taken as evidence of that danger, despite our self-evident capacity to control it. So was the importation into the United States of a cow infected with mad-cow disease, discovered in 2003, although we're still not sure that the mad-cow agent is transmissible to humans at all. So was the spread of avian flu among bird flocks, even though the virus in question cannot be transmitted from person to person and therefore poses negligible epidemic hazard to human populations. And so was the Airplane Man, the young man with TB who became an object lesson in our supposed vulnerability. Bowing to the fantasy of global threat, the CDC leads a project called "Protecting the Nation's Health in an Era of Globalization." Accordingly, officials in diverse jurisdictions mount elaborate charades of "emergency preparedness," claiming they aim to protect us from "bioterrorism" or "emerging infections." They — and we, perforce — worry.

The other part of the magical thinking concerns personal behavior. Officials badger us to quit smoking, exercise more, eat more fruits and vegetables, avoid drugs, use condoms, reduce our stress. We are all simpletons, it seems, and need to be reminded to act in our own best interests. That we might choose to drink too much, eat fast food because we like it, skip the latex because the sex feels better without it — that, as Susan Sontag remarked, "appetites are supposed to be immoderate" — is not open for consideration. Apparently it doesn't matter that, according to available evidence, most people who eat more fruits and vegetables to avoid dying of cancer would not have died of cancer anyway, or that the most likely cause of death for people who exercise more (heart disease or stroke) is the same as that for those who don't.

That many people are too poor to afford the time or the expense of eating whole foods, exercising regularly, or reducing their stress is not part of the magical equation, either. Indeed, the matter of who can afford healthful behaviormight be exactly why the behavior-change crusade is so compelling: If you can afford to shop at a farmers' market, go to the gym, take a vacation, or live in a downtown apartment so you can walk to your office, then you are manifestly not a member of the unwholesome class. Your healthy behavior proves that you are a Worthy in the modern American moral register of health.

Not that behavior is irrelevant: Using condoms, quitting smoking, and eating healthfully do matter. The point is that while changing your behavior can make an appreciable difference to your health, it doesn't necessarily make any difference to society's health — not the difference that a guaranteed minimum income would, or child care, or health insurance. This is the magical thinking of behavior change. Our public-health authorities try to convince us that everything will be better for everyone if only each one of us would do the right thing. It's a little like believing in angels.

Magical thinking is especially odd in our time because this is purportedly the era of evidence-based policy, at least in health. Indeed, our public-health-education programs have become good at teaching how to amass and interpret evidence. But apparently we do not teach how to distinguish evidence generated by good science from evidence produced by bad science. For instance, only weak evidence exists that eliminating transfats alone from the diet will reduce heart-disease risk, and no evidence that it would have any impact for most people (transfat consumption is pretty low in America today). There is no evidence linking crystal meth to actual acquisition of HIV, beyond the known pathways for contracting the virus — although plenty of studies show an association between crystal-meth use and behaviors that people think of as bad (sex with multiple or anonymous partners). The evidence on secondhand tobacco smoke points to a substantial effect for children of smokers but a milder one for adults, and essentially onlyfor prolonged exposure in the home. (If you really wanted to reduce disease risk, you would have to ban smoking at home, not in the workplace or restaurants, and then lock up the miscreants, leaving their children to be raised by smoke free strangers while their parents were incarcerated.)

It isn't so much that health officials ignore the evidence; it just seems tangential at best — important only if it relates to how people behave and not very interesting in its details.

In this way, public health today moves closer and closer to religion. Like Western religions, it is deeply interested in behavior as a way of distinguishing the elect from the masses. And it is less interested in empirical examinations of truth. The authority of simple, received wisdom — fats are bad, cigarettes are worse (and tobacco companies are demonic), exercise makes you whole — trumps the fine print of the inevitably complicated story that science uncovers. No wonder that, when I asked how we in the public-health profession will explain our failure to say anything about AIDS prevention other than "use condoms" (advice, I pointed out, that is ignored by most adults much of the time, anyway), a senior colleague admonished me to never say that in public. It is easyto show that promoting the use of condoms has essentially no population-level impact on the AIDS epidemic in this country, given the relatively low prevalence of HIV in most U.S. populations and the very low proportion of people who use condoms consistently (other than teenagers, by the way; American adolescents are very good at being careful sexually). But that would be a calculation based on evidence, and therefore beside the point. What I was saying was blasphemy.

Can we educate the next generation of public-health professionals to dispel magical thinking like that? Can we teach them to topple feckless officialdom, forswear the sops to corporate producers on the one hand and ideological dogma on the other, and create real reform? Can we restore the twin pillars of rationalism and social justice — and somehow overcome the pernicious dictating of behavioral correctitude?

If we are to do that, we have to change what we teach, and how. Reform that gives the poor the same chance at decent health as the rich has to return to the center of American discourse. It can't be sidelined as a charming anachronism of the Great Society. But that means that we will have to eschew the old rites of the New Left: the religiosity of ideology; the hand-wringing over race; the belief in a magical vinculum joining identity to oppression, oppression to vulnerability, and vulnerability to victimhood.

Not that racism is gone, alas. The legacy of the race-saturated opportunism that helped build the American medical establishment — a history sparklingly elucidated in Harriet A. Washington's Medical Apartheid — remains to be overcome by the medical profession and continues to affect Americans' health. But a greater threat comes from what the sociologist Troy Duster calls the reinscription of the biology of race: the use of medicine — and, I will add, epidemiology — to grant biological cred-ibility to a hierarchy of social desirability.

We all agree that race doesn't exist biologically: There is no DNA signal that reproducibly encodes blackness or whiteness. But talk of risk makes it seem that it does. To identify African American "ethnicity" as a correlate of susceptibility to prostate cancer, as a recent report in Nature Genetics does, or to license a heart-failure medication (BiDil) for African-Americans only, as the Food and Drug Administration has done, is to create a biologic race where none exists. To claim, as a recent article in the American Journal of Epidemiology does, that race is associated with higher levels of "risk behavior" (in this case, smoking cigarettes and marijuana and drinking alcohol) is not only to misappropriate the idea of risk in order to condemn disapproved activities; it also reifies race by associating it with presumptively noxious, morally reproved behaviors.

In the new public health, where behavior is scrutinized and social vulnerability replaced with victimhood, other groups become races and take their place in the hierarchy of the Worthy: Hispanics (diabetes), gays (AIDS, syphilis), and now fat people (heart disease) are inked with the mark of disease risk. Social reform, that old thing, won't help; race is imprinted in the genes.


If we go on teaching our students to focus public health on so-called racial/ethnic/sexual preference disparities, we will train yet another generation of officials to claim that your health problems stem from your membership in an identity group. The racially upright can expect to be fully healthy, but the second-rate cannot. Sell them different products, aim different programs at them, but do not, for a moment, pretend that their problems can be fixed by more financial support, broader access, or fairer distribution of services. Health officials can continue to ignore the shrinking availability of health insurance, the paucity of decent housing for the poor, or the multiple insults to health that are the constant companions of dwellers in some poor, urban neighborhoods. They will go on blaming health problems on attitudes,which are beyond the reach of reform, and get away with wagging their fingers at bad behavior.

Finally, we have to develop curricula that face the vexatious positioning of health as a moral issue. We have to teach the new generation of public-health workers that, outside of Leviticus, there is no moral basis for telling people how they must spend their time. Nor is there moral probity to being healthy. The specter of ill health should not be a stick with which to compel prescribed behavior.

Yet health today also bridges the once-appealing dichotomy of Right and Good, the distinction between the just guarantee of all individuals' civil rights and the just distribution of services that might make peoples' lives better. The sum of insults to health seems to impair a fundamental freedom. So talking about health in our time pitches us into new moral ground. We have to teach the next generation of professionals to take on more-complicated moral and social questions.

We in academe can educate a new generation to replace today's advocates of magical thinking. It will take some open-mindedness, plus the will to resist the inertial tug of old dogma. But restoring sound public health to the American social dialogue is a worthy goal. To quote from Tony Kushner's Angels in America: "More life. The Great Work begins."

Philip Alcabes is an associate professor of urban public heath at the Hunter College School of Health Sciences of the City University of New York. He is writing a book on the history of thought about epidemic disease.


http://chronicle.com
Section: The Chronicle Review
Volume 54, Issue 11, Page B6

Tuesday, October 9, 2007

PreventionJustice.org is live - endorse the statement TODAY


2007 PREVENTION JUSTICE MOBILIZATON


ENDORSEMENT STATEMENT

We are united in demanding leadership in the fight against HIV/AIDS and justice in prevention policies.

HIV prevention efforts in the United States have focused on identifying and changing the individual behaviors (unprotected sex, unsafe drug injection, childbirth and nursing) that contribute to the spread of the virus. These efforts include examining “risk factors” (other behaviors or traits that increase the odds of practicing risk behaviors), populations that are most likely to engage in these behaviors and the levels of these behaviors that lead to greater risks for transmissions among individuals.

However, a focus on these efforts alone failed to achieve the CDC’s goal of reducing HIV transmission by half. In fact, in some communities, HIV/AIDS rates may once again be on the rise.

In order to address HIV from a prevention justice standpoint to lower HIV rates, we must examine the community and structural conditions that increase risks for individuals or groups. Social and structural risk factors are sometimes acknowledged in programs, research and policies. But we have little in the way of assessment tools, prevention or intervention strategies that address the structural, social and systemic problems that increase the risks for certain groups of individuals more than others.

For example, unsafe sex between men is a risk-taking behavior. Homophobic environments that demonize any sex between men diminish their options to make healthier choices. We have no way of knowing whether the opportunity to have unsafe sex is a more powerful component of risk than the societal impact of homophobia, or vice versa. Furthermore, the fact that the prevalence of HIV is already so high in some communities (nearly 50% Among African American men who have sex with men (MSM) in seven cities studied by the CDC, for instance), means that the same level of individual risk behavior among such men exposes them to five or even ten times the risk as would the same behavior among other MSM.

Is a resource-poor Black woman with children is more likely to contract HIV because she “chooses” to have intercourse raw, or because she chooses to do so in order to keep the man who pays her bills, feeds her kids and keeps the roof over their head? Which is the greater influence for transmission?

These are just two examples of the scenarios putting indivdual risk alongside systemic vulnerability that play out in the lives of many people every day. A prevention justice approach calls for the evaluation of societal factors as well as the individual behaviors that heighten the risk for HIV transmission or acquisition. And a prevention justice approach incorporates both individual and structural approaches for more effective HIV prevention strategies.

The quest for a “magic bullet,” solution, whether a single behavioral or biomedical intervention, is not likely to end the AIDS crisis. We urgently need theories, assessment tools and hybrid prevention strategies that address risk in the context of vulnerability and that directly address the root causes of vulnerability.

These four key principles that must be reflected in a focused, justice-based HIV prevention strategy that can actually stop HIV/AIDS:

1. WE NEED THE TRUTH AND THE TOOLS: UNIVERSAL ACCESS TO SEXUAL HEALTH EDUCATION, HARM REDUCTION AND HIV PREVENTION

  • Prevention justice asserts the fundamental right of all people to expect every effective approach to be employed to prevent HIV transmission. Everyone at risk of transmitting or acquiring HIV must have access to scientifically based, culturally and linguistically-appropriate sexual health, harm reduction and HIV prevention information, materials and tools.
  • The federal government bears primary responsibility to fund these efforts at adequate levels (at least $2 billion per year across programs), and must end bans on funding for effective programs such as syringe exchange. The next President of the U.S. should develop a results-oriented AIDS strategy that incorporates prevention justice principles and policies.
  • If political and cultural barriers impede such access (such as bans restricting access to sterile needles/syringes, and condoms in prisons and jails; comprehensive, accurate sexual information and skills for school youth or detainees; or the gag rule on naming “harm reduction” in federally-funded research and programs), then funders and providers of prevention services must also provide significant funds or strategies to remove these barriers.


2. IT’S NOT ONLY WHAT YOU DO, IT’S WHO YOU ARE: HIV/AIDS AS PROOF POSITIVE OF INJUSTICE:

  • All prevention campaigns and strategies must include explicit goals to lessen and eventually eliminate structural risk factors that lead to community-level or population-level vulnerability, such as homelessness, high rates of incarceration, domestic and other gender-based violence, lack of adequate access to high-quality health care and/or a living wage or income.
  • They must include plans to eliminate any significant disparities among populations in HIV prevalence and risk, including those associated with race and ethnicity, immigration status and language, gender and gender identification, sexual orientation, nationality, age and area of residence. The greatest disparities must receive the greatest resources and priority of effort to eliminate.

3. AIDS DOESN’T DISCRIMINATE… BUT SOCIETY DOES: END VULNERABILITY BY AFFIRMING THE DIGNITY AND RIGHTS OF ALL:

  • All HIV prevention efforts must include an affirmation of the dignity and rights to equality of every individual (including those living with HIV/AIDS) and must actively confront social, cultural and legal norms that prevent or impede realization of such rights and dignity, such as racism, sexism, and homophobia; HIV and drug-use stigma; or discriminatory legal status.
  • Any programs that claim to prevent HIV by attacking the dignity and rights of individuals — such as abstinence-only-until-marriage programs that encourage sexism, homophobia and AIDS stigma — must be defunded and repudiated.
  • Since rights are meaningless without the means to realize and use them, all HIV prevention must include or ally with efforts to provide every human with the economic and other material necessities of life, including adequate housing, employment or income, physical and mental care, food and nutrition, and drug treatment – the lack of which have been shown to drive HIV spread.


4. DON’T BLAME US OR SHAME US FOR WHAT YOU DON’T KNOW: RESOURCES, ETHICS, AND COMMUNITY INVOLVEMENT IN CRITICAL RESEARCH AND MONITORIING

  • Communities and programs lack the resources and tools to fill the gaps in our knowledge base on HIV prevention. The HIV prevention research endeavor must be funded in sufficient quantity and diversity as to promptly solve critical unanswered questions and provide essential missing tools and technologies. Research must focus on providing tools to assess community vulnerability and structural risk and to guide the design of efficient, comprehensive, multifactorial prevention strategies, as well as investigating new individual behavioral or biomedical interventions.
  • Further, government and private entities engaging in research and policies must provide timely, understandable and accurate information on their work and proposals, actively soliciting and integrating diverse community input into resource allocation and policy formulation.
  • The basic elements of counting and describing people living with, or risk for HIV infection (surveillance categories and systems, testing, case reporting, partner notification and counseling) must not blindly follow previous, narrow medical public health models, but must reflect the other principles described above. These systems and methods must be designed and implemented with awareness of their direct or indirect impact on individual dignity as well as community health and vulnerability.
Click here to go to the site, learn more, endorse the statement.

Monday, August 27, 2007

MICHAEL MOORE'S "SICKO"— BROAD REACH AND IMPACT EVEN WITHOUT THE POPCORN?


NEWS RELEASE from the Kaiser Family Foundation

Monday, August 27, 2007

Few Have Seen the Movie But Nearly Half of the Public is Familiar with It


"Sicko" Gets Many Talking About Health Care Issues, Reinforcing Views of Some and Encouraging Others (Even Some Conservatives) To Re-Think the Need for Reform


Menlo Park, CA — If the potential impact of Michael Moore's documentary "Sicko" were dependent solely on those who have actually seen the film, the result might be a passionate but narrow conversation among the 4% of adults who said they watched it in a new Kaiser Family Foundation poll.

But, with a big free media bounce reaching beyond the movie reviews to the news and talk shows, the new poll finds that almost half (46%) had seen the movie or heard or read something about it a little over a month after its national release. This is not much less than the share of adults (61%) who were aware of "An Inconvenient Truth," the documentary on climate change featuring former Vice President Al Gore released in May 2006.

Among those familiar with "Sicko," 45% said they had a discussion with friends, co-workers, or family about the U.S. health system as a result of the movie; 43% said they were more likely to think there is a need to reform the health system; 37% were more likely to think other countries have a better approach to health care; and 27% said they were paying more attention to the positions of presidential candidates on health care. About equal numbers of those aware of the movie thought it accurately represents problems in the U.S. health system (36%) versus overstating them (33%), and positive impressions of "Sicko" outweighed negative ones 48% to 33%.

"Our poll shows how the combination of good timing, a controversial director, and lots of free media attention can generate real impact for a film that very few people have actually seen," said Kaiser President and CEO Drew E. Altman, Ph.D. "Sicko is not a commercial juggernaut like Transformers or Harry Potter, and we're not likely to find Michael Moore action figures at fast food restaurants any time soon. But we are starting to see how films about social issues that capitalize on free media rather than traditional marketing can become social phenomena too."

The movie has been much more likely to resonate with those already inclined to support its point of view. For example, 43% of self-identified liberals who are familiar with the film had a very positive impression of it, compared to 9% of conservatives.

But its impact is not entirely predictable - while 56% of liberals familiar with the documentary report that they are more likely to believe there is a need for reform of the U.S. health care system as a result, a smaller but still substantial share of conservatives aware of "Sicko" (29%) also said so, as did 23% of Republicans. And, 37% of conservatives said they had a discussion with friends, co-workers, or family about the health system following the movie, while 18% said they were paying more attention to what the presidential candidates are saying about health care. Results were similar by party identification.

Still, "Sicko" has not altered what have long been the fundamental factors shaping the public's views on health care. When asked what has had the biggest impact on their opinions about the issue of health care recently, just 2% of the group aware of "Sicko" cited the film; 62% pointed to their personal health care experiences, and 9% said it's what they've heard or read about proposals from presidential candidates.

The film’s main targets - health insurers and HMOs - were viewed unfavorably by about half the public overall (51% and 46%, respectively), which is similar to perceptions of drug companies (52% unfavorable) and a larger share than viewed defense contractors unfavorably (41%). By contrast, hospitals and doctors were viewed largely favorably by the public.

Methodology

Kaiser Family Foundation poll about the movie "Sicko" was conducted as a part of the Kaiser Health Tracking Survey: Election 2008 from August 2 to August 8 among a nationally representative telephone sample of 1,500 adults, including 748 adults who reported having seen the movie or heard or read anything about it. The margin of sampling error for the full survey is plus or minus three percentage points, and for results based on respondents familiar with the movie "Sicko", the margin of sampling error is plus or minus four percentage points. For results based on subgroups, the margin of sampling error is higher. Full results, including question wording, are available here.

Wednesday, August 15, 2007

Syphilis on backs of buses in Chicago


Chicago is no longer the syphilis capital of the U.S., something that might be hard to believe if you’ve recently been stuck behind a Chicago Transit Authority bus.

Syphilis "Syphilis is back!" warns a taillight ad on 65 CTA buses, part of a four-week public health campaign targeting the gay community in the Chicago neighborhoods of Lake View, Andersonville, Rogers Park and Edgewater.

Read the rest in the Chicago Tribune.

Monday, August 13, 2007

World’s Best Medical Care?


Editorial in the New York Times - August 12, 2007

[click political cartoon for its origin]

Many Americans are under the delusion that we have “the best health care system in the world,” as President Bush sees it, or provide the “best medical care in the world,” as Rudolph Giuliani declared last week. That may be true at many top medical centers. But the disturbing truth is that this country lags well behind other advanced nations in delivering timely and effective care.

Michael Moore struck a nerve in his new documentary, “Sicko,” when he extolled the virtues of the government-run health care systems in France, England, Canada and even Cuba while deploring the failures of the largely private insurance system in this country. There is no question that Mr. Moore overstated his case by making foreign systems look almost flawless. But there is a growing body of evidence that, by an array of pertinent yardsticks, the United States is a laggard not a leader in providing good medical care.

Seven years ago, the World Health Organization made the first major effort to rank the health systems of 191 nations. France and Italy took the top two spots; the United States was a dismal 37th. More recently, the highly regarded Commonwealth Fund has pioneered in comparing the United States with other advanced nations through surveys of patients and doctors and analysis of other data. Its latest report, issued in May, ranked the United States last or next-to-last compared with five other nations — Australia, Canada, Germany, New Zealand and the United Kingdom — on most measures of performance, including quality of care and access to it. Other comparative studies also put the United States in a relatively bad light.

Click here for the rest.

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