Showing posts with label HIV stigma. Show all posts
Showing posts with label HIV stigma. Show all posts

Tuesday, September 27, 2011

Stop Transmitting Silence: Join us for the conversation

There is a disturbing rise
in the number of cases of STD/STI and HIV/AIDS
in the black community.


What can we do to stop this?

Come hear from elected officials, public health advocates,
faith-based leaders, parents and youth.

Wednesday, October 5th
6pm-8pm

Chicago Urban League
4510 S. Michigan Avenue
Chicago, IL 60653

Refreshments will be served.

Thursday, April 28, 2011

Deconstructing the HIV Stigma and Drama re:Nashville Dinner Theatre’s Production of Rent

Those of us who live it know that people with HIV sometimes die of stigma. It may not have been written on their death certificates, but we’ve been present when stigma was the true cause of death. 

by Mark Hubbard

Disclosure: F. Daniel Kent, the writer of last week’s Rent Violations: Nashville Dinner Theatre Evicted from Dining Out for Life, and I began our friendship about ten years ago when we met through mutual acquaintances shortly after his HIV diagnosis. I’m one of several folks Kent leaned on for moral support (but not for content) during the time he was writing the piece. The two of us move in a couple of the same circles and we share what I like to call the “gay Broadway gene.”

For the record, this article was not his idea. I wasn’t there at the Rent rehearsals and I haven’t seen a performance. Although I know and admire one cast member, I don’t know any of the individuals quoted or written about in the article. I am only involved in the Nashville theater scene as an occasional audience member.

I’ve been looking back over the past week and trying to find meaning in the midst of what has at times devolved into a pissing match. I keep reminding myself that there are things I believe, things I know, and things that I can never know.

I know that word got to me and others in the community about fear and stigma on the set of Rent before Kent ever mentioned it to me.

I know that Nashville CARES’ involvement was a rather late development, occurring only after Kent had been working on the article for some time.

I know that Kent was very determined to get this story right. Early on he decided that if key and corroborating sources would not go on the record, he would not write the story. I also know that he was more patient than usual – waiting days and weeks to talk to those involved.

I believe that my friend had nothing to gain and everything to lose, including his considerable reputation, should he fail to write the story responsibly. Kent has worked on both sides of the stage in music and in theater for sixteen years, and is extensively networked in the entertainment field. In addition to writing prolifically for local and regional media, he has published articles on artists like Jennifer Hudson, Keith Urban, and Nicole Kidman in and on national media outlets like the OutInAmerica.com, the Bay Area Reporter, and US Weekly.

Those familiar with his work know that he often uses the simple Q&A style made popular by Interview magazine. What are often phone interviews are always recorded. I asked Kent whether that applied to the unnamed sources in his story. “Everything I did was recorded,” he replied. “There was fear of reprisals; there was fear that they’d be removed from the show. In order to get the story, I had to promise certain parties that their anonymity would be guarded.”

Nashville is too big to call a town and too small to be considered a city by those who live in a real one. That can present challenges. Kent deals with them in media, I deal with them in HIV advocacy. We wear a lot of hats, and it’s difficult to keep the roles cleanly delineated. We have to constantly think about how actions in one arena might affect us in another. We can’t afford to accumulate enemies. There are often too few allies sharing the load, and sometimes the fact that information can’t be shared with them for extended periods of time is stressful.

Subsequent to the publication of his story on Examiner.com, Kent invited a group of friends, some out of town guests and the replaced actor to accompany him in seeing the show. Invitees were told to be on their best behavior and that given the scenario, admittance was not assured. During his interview, theater owner and co-director Kaine Riggan had offered to “comp” him and a couple of guests so that they could evaluate the show on its own merits. Kent admits that he probably brought more guests than expected but also asserts that he was unable to reach Riggan to discuss this despite making repeated calls during the day. There was a confrontation after the show that revolved around Riggan’s desire to have the story taken down. He had been working to intimidate Examiner.com into doing so, and was eventually successful. Kent promptly moved the story to his own site, NowHearThis!

The dialogue continued the next day in an embarrassing Facebook exchange for which both parties were in my view responsible. Riggan seemed to think Kent’s integrity was for sale – that some deal could be made for him to withdraw the article. Kent, on the other hand, succumbed to the temptation to exploit that by offering to trade the story against a rather lengthy and detailed set of demands. While his intention was to address each of the very real harms that had been inflicted, I think it was a mistake for Kent to step into a role better filled by others in the community. I also think Riggan’s suggestion that the article should be removed was ridiculous.

Neither of the two are innocents. Both admit having very strong personalities. Kent confesses he can be a confrontational loudmouth. Riggan describes himself as a tantrum throwing closet redneck. I believe Kent has at times been too easily sucked into the personal drama and needs to examine his own complex motives. I believe Riggan responded to the story with desperate, unwarranted legal threats and innuendo; he and his defenders have at times falsely accused Kent of dishonesty while propagating mistruths of their own. Kent needs to let his excellent work stand on its own merits. They both protest too much, methinks.

There are a few other things that are clear to me.

Nashville CARES is a large, long-established, highly respected organization that consistently exhibits careful judgment and exceptional public relations skill. Their decision to remove the Nashville Dinner Theatre from the Dining Out for Life website speaks for itself.

Had Kent wished to maximize personal embarrassment for Riggan, he could have. He certainly failed to mine a wealth of material in the recorded interview. Had he wished to write a one-sided story, he wouldn’t have featured the categorical denials by both Riggan and Creative Director Vance Nichols.
Riggan has a reputation among the theater community in Nashville – one made up of positive and negative elements. The dinner theater crowd seems to have cheered his more traditional productions over the years both downtown and at the suburban senior center location where he was previously in residence. The facility where his new company resides has been lauded for its historical character. On the other hand, it’s known that Riggan departed two previous positions amid controversy, hard feelings, and accusations.

I can never know whether Byron Rice’s replacement was directly related to his HIV status. I can never know what went on in the head of actress Joanne Coleman, who was apparently shocked by Byron’s frank acknowledgement that he is HIV positive.

Whether it was a sincere disclosure or a ruse, Riggan’s claim that he and other staff thought that an individual would prefer being let go because of his HIV status over being let go based on his fitness for the part is telling. It appears to me that this production was mounted by a company whose management did not possess the cultural understanding necessary to do so with integrity.

I don’t want to see Nashville Dinner Theater or its production of Rent fail. Having multiple theater venues in Nashville means variety and options. As a gay man living with HIV/AIDS, though, I get nervous when folks who don’t share or truly understand my experience try to explain or portray it.

The cast who threatened to walk if the show was mutilated are heroes. I believed it when one of them emailed to say “what matters most to me is that someone was touched, moved, and inspired to think more deeply and more broadly about their lives...and to experience compassion for this human experience.” Byron Rice is also a hero for bravely owning his positive HIV status.

Those of us who live it know that people with HIV sometimes die of stigma. It may not have been written on their death certificates, but we’ve been present when stigma was the true cause of death. My friend F. Daniel Kent is my hero because even though he was faced with a difficult, personally affecting story, even though he stood to gain very little, he dared to investigate and tell the tale when no one else would.

Friday, April 22, 2011

Extreme Measures: Signing the Dotted Line Before Getting Busy

via Housing Works, by Julie Turkewitz

For Tracy Johnson, 22 and HIV-positive, romance often begins at a karaoke bar. There’s music, conversation and innocent touching. He’s at ease until it’s time for the first kiss—that’s when he leans in, pulls out the document and asks the object of his affection to sign, indicating he’s shared that he has HIV.

That piece of paper, he believes, could save him from years behind bars if a partner ever alleges that he didn’t disclose his status. He carries it everywhere.

“I was scared,” said Johnson, a medical assistant and motivational speaker from Cleveland. He typed up the document after seeing a string of media reports about judges throwing HIV-positive Ohio residents into prison for non-disclosure. “I’m young, I don’t want to go to jail, so I want to cover myself at all angles.”

Read the rest.


Thursday, April 21, 2011

Rent Violations: Nashville Dinner Theatre evicted from “Dining Out for Life"

Author F. Daniel Kent is a LifeLube ally, a fellow PLWHA, and a freelance journalist for a number of local and national media outlets.  Earlier today, he broke the news story below. One of his journalist colleagues commented that it is, "probably the best in-depth piece on a community controversy I've seen in a long time."

Daniel comments:
This could be the most important piece I have EVER written. As the narrative slowly unraveled over two plus weeks of interviews, research and consultations, I was amazed to find a story I could not have imagined in almost 37 years of life, almost 20 years of covering arts & entertainment around the country, and as a person whose HIV has lived with him for almost 13 years. One last thought: If this is happening in the 'Athens of the South', how much worse is it in less fortunate places? How much worse is it in your own back yard? This story is proudly dedicated to every person who has gone before me and struggled to make the voice of education heard over the fray and to all you who are still here and are yet to come. This is why we fight.



Here's the story, via NowHear This!

After a grueling production schedule including numerous casting delays, alleged vandalism and an impromptu cast walk-out protesting changes to the script, Nashville Dinner Theatre’s current production of the Broadway hit musical Rent has hit yet another violation. Nashville CARES, Middle Tennessee’s high profile non-profit HIV & AIDS support organization has removed the venue from their official Dining Out for Life list of participating restaurants after allegations that the show’s Co-director and theatre owner Kaine Riggan supposedly dismissed actor Byron Rice (who is HIV+) from the show due to his HIV status.

Read the rest.


Tuesday, March 29, 2011

IL AIDS Adovcate Talks Stigma

Illinois Alliance for Sound AIDS Policy member Kat Griffith talks stigma on HuffPo:

Stigma is a three-dollar word that affects millions of Americans in different ways. Defining stigma as simply "a mark of shame or discredit" doesn't sound very impactful, and yet communities around the globe are paralyzed by it every day. I know this firsthand because I am HIV-positive. I have personally experienced the ignorance and discrimination faced by those of us who live with HIV. As you'll read below, it nearly took my life and silenced me for twenty years, but that changes today as I join the HIV Anti-Stigma T-shirt Campaign.

Watch Kat below and read the rest of her piece here.


Wednesday, January 5, 2011

'It's Never Just HIV' Ad Campaign Oversimplifies the Issue - Sean Strub on HuffPo

via Huffington Post, by Sean Strub

If the NYC Department of Health pursued a campaign to combat transmission of HPV, does anyone think they would, for a moment, consider using a close-up image of a horribly diseased vagina? 
Excerpt 1:



I think this advertising campaign is terrible, mostly because it may contribute to further spread of the virus. The only good it has accomplished is that it has provided a brief moment when a few more people are thinking about and paying attention to HIV-prevention issues. That is an opportunity that I hope we will not waste.

Supporters of these ads claim HIV prevention has been a failure, and they are angry that the epidemic has disappeared from the media and fallen off the list of priorities for LGBT organizations and others who once were leaders in the fight against AIDS.

I share that anger. It is profoundly frustrating, disempowering and, quite frankly, depressing to see so many one-time activists, caring friends and neighbors, concerned journalists, political and public policy leaders disappear like a puff of smoke once combination therapy brought a relative cure to those with the privilege of healthcare access.

Excerpt 2:

In 1983, very early in the epidemic, Joseph Sonnabend, MD, famously and courageously said, "the rectum is a sexual organ and it deserves the respect a penis gets and a vagina gets." Eric Rofes, Walt Odets and other pioneering thinkers about gay male health and sexuality have subsequently explored similar themes.

I couldn't help but think of this when I saw the close-up image of a man's anus, covered in cancerous lesions, in the NYC DOH ad. Anal cancers are preceded by genital warts, which are caused by strains of HPV, the Human Papiloma Virus. Last year, 4,000 women in the U.S. died of cervical cancer; in virtually every case the cancer was caused by HPV.

If the NYC Department of Health pursued a campaign to combat transmission of HPV, does anyone think they would, for a moment, consider using a close-up image of a horribly diseased vagina?

The bodies and sexuality of gay and bisexual men are seen as dangerous and our sexuality as threatening. We are so little respected that it is acceptable to show an exceptionally intimate part of a gay man's body, one visibly riddled with cancerous lesions, and put it on television as a tool to frighten us.
Read the rest.

Sunday, December 12, 2010

The Role of Fear in HIV Prevention


We've been rather animated on this topic of late, owing to the repugnant new "It's Never Just HIV" campaign from the wizards at the NYC Dept of Public Health.

Guess what, fear doesn't work. Check out this short, well-sourced brief on the role of fear in HIV prevention strategies and learn why.

And if you're too lazy, here are the 5 key points:

• Fear arousing imagery can be good at attracting attention and is often memorable.

• Fear-based campaigns are more persuasive for individuals who are already engaging in the desired, health-protective, behaviour.

• Arousing fear in individuals can have many unintended consequences, such as denial or othering.

• Most homosexually active men are already fearful of HIV.

• Arousing fear is not an effective means of facilitating sexual behaviour change.


*** Also of interest, from the American Journal of Public Health (1988) Effective and ineffective use of fear in health promotion campaigns.

 

Friday, December 10, 2010

American Family Association: Feds Need To Call For Abstinence From All Gay Sex

Are they the ones behind that crappy new HIV ad from NYC?

via Joe.My.God.

Excerpt:
The goal of the surgeon general’s office, since it can’t make smoking illegal, is to reduce the smoking rate from its current 20 percent to 12 percent by 2020. We currently have between two and four percent of the population engaging in gay sex. How about we ask the surgeon general to launch a crusade to reduce the gay sex rate from four percent to one percent by 2020? Says the surgeon general, in words that can and should be addressed to practicing homosexuals, “It's never too late to quit but the sooner you quit the better.” In other words, the official administration policy on cigarette smoking is abstinence. Let’s make it the official government position on gay sex.
Read the rest.

Thursday, December 9, 2010

Totally F'd Ad on "Living" with HIV from the NYC Dept of Health - you gotta see this garbage

This ad is, hmmmmm, let's see, absolutely hateful and totally stigmatizing to all of us living with HIV. For a start. Thanks NYC Dept of Health for making us out to be demented lepers. Thanks for saying that even if we take our meds, our lives will be hell, with brittle bones and anal cancer. And thanks for the super scary voice-over to make sure we're all appropriately terrorized.Who consulted on this? Focus on the Family? Concerned Women of America? David Bahati, our friendly Ugandan legislator who wants gays imprisoned or dead? Satan?How many guys who don't know their status - and should know their status - will be convinced by this horror show to get tested? Would you want to know your status if this told the truth about what lay in store for you? Negative guys - will the lovely glimpse of anal cancer make you wear a condom every single time, maybe scare you into a full latex body suit?  Will this ad make you run for the hills when the guy you're cruising tells you he's POZ (aka DERANGED DISFIGURED?




POZ guys - how do you like this? 
Neg guys? 
Status unknown guys?  
TELL US.

Thursday, December 2, 2010

Video: The Cost of Stigma

via IN THE LIFE

Stigma is the invisible mark on individuals targeted by fear and misinformation. 

This month on IN THE LIFE, we look at the power of stigma within our justice system and how the myths and fear that spread with the AIDS epidemic gave rise to laws criminalizing HIV transmission. And we meet researchers who consider stigma as a possible key link between bisexuality and poor health.

Monday, September 27, 2010

Dr. Anthony Fauci, Director of NIAID Statement on National Gay Men's HIV/AIDS Awareness Day

Many gay and bisexual men have been instrumental as AIDS activists in raising awareness about the public health impact of HIV/AIDS, shaping the HIV/AIDS research agenda and advocating that this research is well funded. In addition, gay and bisexual men catalyzed the movement to bring treatment and care to people with HIV/AIDS and to promote HIV prevention. Before the development of proven, effective therapy for HIV/AIDS, leaders in the gay and bisexual community influenced me to endorse a policy that gives people with serious illnesses access to experimental treatments, even if the individuals do not qualify for ongoing clinical trials of those treatments. This policy established by the U.S. Food and Drug Administration has become a source of hope for patients with life-threatening conditions.



The third annual National Gay Men’s HIV/AIDS Awareness Day on Sept. 27, 2010, marks an occasion to reflect on how profoundly HIV/AIDS has affected gay and bisexual men. It also is a fitting time to recognize how much this group has influenced the development and implementation of strategies to prevent and treat the virus and the disease.

Read the rest.

 

Friday, May 7, 2010

Hateful "He's the One" Campaign Demonizes Gay Men with HIV

UPDATE - the site has just been pulled down. Still worth a discussion, no? But, it continues to live on the back of this week's Windy City Times.

[via diego de la noche and amigos]

Okay, we're mad. There is a new Illinois HIV prevention campaign that is based on fear and portrays gay men with HIV as demons. Are we back in the nightmare 80's, without the Flock of Seagulls hairdos?



"He's the one" launched a few weeks ago, and to anyone that was paying attention, it looked like a come-on for a new hook-up site. The ads encouraged people to sign up to win an iPad - but otherwise revealed nothing more. Then, this week, the rest of the campaign was unveiled - "He's the one, that could infect you."

Real nice.

So - it not only further stigmatizes those of us living with HIV it does nothing to help people understand the context in which new infections are most likely to occur.

Here is what is known:

People who don't know their HIV status have more unprotected sex compared to those who know they are positive.

A large percentage of new infections happen  between people when one is experiencing acute infection.

Similarly, many new infections occur in the context of relationships, between main sex partners. A study published in 2009 showed that  approximately 2/3 of new infections among gay men happen within relationships, due to "a higher number of sex acts with main partners, more frequent receptive roles in anal sex with main partners, and lower condom use during anal sex with main partners."

This stupid, hateful campaign tells you none of this, elucidates NADA. It just tries to scare the hell out of you regarding  that next hot (sinister) trick who might just do you very, very wrong.

What do you think? Are we on point here? Is this sort of campaign helpful in any way?

 [current windy city times - back cover, full page ad]

Tuesday, April 20, 2010

NYT: With AIDS, Time to Get Beyond Blame

We cannot experience illness 
without casting around for blame. 
 
via NYT, by Abigail Zuger, M.D.

You don’t hear much about AIDS in America anymore. The few new headlines are reserved for dispatches from the developing world, where the dying young still make good old-fashioned heart-wrenching copy.

But AIDS endures right here in the U.S.A.: our outpatient clinics are bursting at the seams, and new cases show up daily. A million domestic stories are languishing untold, but they are not the operatic tragedies we have grown used to.

Instead, as illustrated by last week’s report about a Florida athlete indicted on charges of willfully transmitting H.I.V., the virus that causes AIDS, these are nuanced and complicated fables, with morals that extend beyond the disease itself.

Read the rest.

Monday, April 19, 2010

POZ people aren't just criminals, now they're bioterrorists too

They're Trying to Call HIV-Positive People Bioterrorists?
via AlterNet, by Anna Clark

The body of a 44-year-old man is a bioterror weapon, according to a Michigan county prosecutor who is charging Daniel Allen, with "possession or use of a harmful biological device" for biting his neighbor during a neighborhood fight. Allen is African American and HIV-positive; his case is believed to be the first in the nation where prosecutors are linking anti-terrorism laws to an individual's HIV infection.

Read the rest.

Monday, January 4, 2010

HIV/AIDS Travel Ban Lifted - OFFICIALLY



via Advocate.com

The United States on Monday lifted the 22-year-old ban that prevented anyone with HIV or AIDS from entering the country.

President Barack Obama announced the change in October, calling the ban incompatible with the American goal to be a leader in the fight against HIV/AIDS. The country is scheduled to host a biannual global HIV/AIDS summit for the first time in 2012, according to the BBC.

“The ban was imposed at the height of a global panic about the disease at the end of the 1980s,” reports the BBC. “It put the U.S. in a group of just 12 countries, also including Libya and Saudi Arabia, that excluded anyone suffering from HIV/AIDS.”

Source

Thursday, November 5, 2009

Refusing to Have Sex With HIV-Positive People: Why It's Not a Prevention Strategy


Reposted from Trevor Hoppe's Trevorade Blog

I was having drinks with a friend of mine -- we'll call him Patrick here -- this weekend when the subject of having sex with HIV-positive men came up. "Oh, I would never have sex with an HIV-positive guy," he casually remarked -- as if such a thing were already obvious. I was shocked not just by Patrick's statement, but also by the categorical bravado in his delivery. To have sex with HIV-positive men, as he went on to explain, was to expose himself to unnecessary risk of infection. I've been replaying this conversation again and again in my head. How could he be so outrageously calculating in his cooly expressed exclusionary strategy? Today I want to spend a few moments reflecting on these kinds of statements, because I think many people would uncritically read them as legitimate prevention strategies. I will argue here, however, that in reality that these kinds of strategies that are totally bankrupt in terms of actual risk reduction. Moreover, what I think this kind of statement actually tends to do is not actually promote any real reduction in risk, but rather to reinforce and reproduce harmful stigma against HIV-positive people.

Read the rest...

Monday, July 27, 2009

NEW CHICAGO DATA: HIV Infection Among Men Who Have Sex With Men


Chicago HIV Behavioral Surveillance, 2008
via Chicago Department of Public Health

Exploring Racial/Ethnic Disparities
in Levels of HIV Infection


Abstract

Background and Methods:
The Chicago Department of Public Health’s Office of HIV Behavioral Surveillance conducted a survey with 570 men who have sex with men (MSM) during 2008. The survey aimed to describe HIV prevalence rates, rates of unrecognized HIV infection, sex and drug behaviors and prevention utilization among MSM in Chicago. MSM were randomly recruited from randomly selected venues where MSM congregate.

Results:
91 of 524 (17.4%) MSM tested HIV-positive at the time of the survey. HIV prevalence among Black MSM (30.1%) was at least twice the rate of White (11.3%) and Hispanic MSM (12.0%). Despite observed disparity in HIV prevalence, individual-level sex and drug use behaviors (condom use, knowledge or partner status, etc.) did not differ significantly by race/ethnicity. Fifty percent (50%) were unaware of their HIV infection at the time of the survey. Many persons who were unaware of their HIV infection at the time of the survey had acquired their infection in the past year and were engaged in HIV testing and medical care at similar rates as other MSM. Among those who had not tested for HIV in the past year, fear of testing positive and conversely, perceiving oneself to be ‘low risk’ were the most common reasons cited for not testing.

Conclusions:
Levels of sex and drug use behaviors, and consequently, HIV prevalence rates remain high across MSM racial/ethnic groups in Chicago. Continued focus on individual-level risk behaviors and HIV testing will only have a limited impact on reducing racial disparities in levels of HIV infection. Rate of new infections among Black MSM, the background community HIV prevalence among Black Chicagoans, and MSM sexual mixing patterns may be contributing factors to racial disparities in HIV prevalence and need to be addressed in future research and prevention efforts.

Read the full report.

Monday, July 20, 2009

Alarming African Gay Male HIV Rates Highlight Need to Fight Homophobia


HIV rates among gay men in some African countries are 10 times higher than among the general male population, says research in medical journal the Lancet.


The report said prejudice towards gay people was leading to isolation and harassment, which in turn led to risky sexual practices among gay communities. But the risks are not limited to gay men, as many of the infected also have female sexual partners. The report called for greater education and resources in the fight against HIV.

The Oxford University researchers found that the prevalence of HIV/Aids among gay men in sub-Saharan African has been "driven by cultural, religious and political unwillingness to accept [gay men] as equal members of society".

Lead researcher Adrian Smith told the BBC there was "profound stigma and social hostility at every level of society concerning either same-sex behaviours amongst men, or homosexuality".

"This has the consequence that this group becomes extremely hard to reach," he said.

Read the rest here.
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